 Early Times Report
Jammu, Mar 13: In the backdrop of Rare Disease Day, Lysosomal Storage Disorders Support Society (LSDSS), a patient group association for Lysosomal Storage Disorders (LSDs) organised arare disease awarenessevent in Jammu at Sri Maharaja Gulab Singh Hospital.
The aim was to raise awareness about rare diseases, specifically LSDs, and its different aspects and to support the rare diseases community at large.
The event was also a platform for bringing the attention of the state government on the necessity of addressing the treatment needs of the patients Patients from Jammu & Kashmir suffering from LSDs and eminent doctors from the hospital and Government Medical College (GMC) and Dr.S Seema Thakur (Genetics & Fetal Medicine, Fortis Hospital, Delhi) were presentat the event. Moreover, Dr. Rekha Harish HoD Paediatrics, was the Honourable Chief Guest.
"Although uncommon, the number of patients suffering from such disorders is large considering the population of the country. It, thus becomes important that rare diseases get their due recognition andthat they are considered a public health challenge. The commemoration of Rare disease day through this event is the perfect occasion to highlight the various aspects of this health issue.
Further, there is also a need to highlight the various challenges that the patients face and how treatment can have a positive impact on a patient's life, especially in the case of LSDs", said Rajendra Tyagi (Treasurer, LSDSS). |
